Debra Piel de Mariposa

Welcome to DEBRA Piel de Mariposa

The Piel de Mariposa Charity Shops are a sustainable and charitable fashion project run by the NGO DEBRA Piel de Mariposa.

The mission of this project is to raise awareness of Piel de Mariposa (Butterfly Skin) and raise funds to support the team of nurses, psychologists, social workers and researchers that take care of more than 380 affected families.

Piel de Mariposa is a rare, genetic and incurable disease that causes extreme skin fragility. Everyday activities such as eating or walking can cause wounds and blisters in those affected.

That is why, in our shops, we work to raise the funds we need to continue supporting to the Butterfly Skin families while giving donated items a second life, including clothing, accessories, home décor, toys and much more, helping to protect the environment we live in.

Compassionate National Support for Affected Families

Piel de Mariposa (Epidermolysis Bullosa) often impacts families without warning, typically identified only at birth. In response to the immense uncertainty and distress of those early days, DEBRA Piel de Mariposa serves as the only specialized national support organization across Spain. The non-profit brings together a multidisciplinary team of specialized nurses, psychologists, social workers, and a dedicated researcher to support every stage of care. Together, they work directly beside affected individuals, ensuring no family ever walks this path alone.

Through the collaborative dedication of member families, healthcare professionals, and committed volunteers, the charity has achieved vital milestones in clinical care and public awareness. However, significant hurdles remain in expanding specialized services and advancing scientific research. Therefore, our team operates continuously with deep transparency, empathy, and professional integrity. Supporters can get involved by becoming members, donating, or participating in grassroots initiatives across the country.

Multidisciplinary Care and Daily Guidance

Caring for a rare condition requires specialized knowledge and consistent daily attention. Consequently, the foundation coordinates home visits and offers continuous clinical consultation to protect vulnerable skin. Our nurses train family members in gentle wound care techniques and modern bandage applications. Meanwhile, our psychological specialists provide emotional reassurance to parents navigating a new diagnosis.

In addition, our social workers assist households with administrative procedures, disability certifications, and educational access. By collaborating directly with schools and local hospitals, our professionals build an informed community around each child. This holistic framework ensures that patients receive dignity, expert medical attention, and practical solutions in everyday settings.

Advancing Awareness and Collaborative Research

Raising public awareness remains an essential cornerstone of the organization’s mission. Furthermore, we partner with international medical bodies and universities to stimulate scientific research into effective therapies. Every contribution helps fund critical projects aimed at easing pain and accelerating promising treatments. Together, we can build a society that understands rare dermatological diseases and supports every patient. Join our mission today to help us create a brighter future for every child and family facing this condition.